Purpose of Membership
Our membership scheme helps ensure that the Xia-Gibbs Syndrome UK Foundation remains community-led, transparent and financially sustainable. Members play an active role in the governance of the charity, including the right to vote on key decisions and influence the future direction of our work.
Membership contributions help cover the core running costs of the charity, such as marketing materials and web hosting, allowing donations to be directed solely towards supporting families and delivering frontline activities.
Why Become a Member?
Our membership scheme is a vital part of the Xia-Gibbs Syndrome UK Foundation. It ensures we remain community-led, financially sustainable and grounded in the voices of those who matter most: the families we support.
Becoming a member is more than a gesture of support. It offers a meaningful role in the life of the charity, including the ability to vote on key decisions, elect trustees and contribute to the direction of our work.
Membership fees help cover essential operational costs, such as website hosting, awareness materials and meeting expenses. This allows public donations to be used entirely for supporting children and families affected by Xia-Gibbs Syndrome.
Becoming a member of the Xia-Gibbs UK Foundation means having a voice in how the charity grows. Members can vote on key decisions, including electing trustees, and help shape our future. Your support also helps us cover essential costs like printing, awareness materials, and running the website. Whether you join to take part actively or just want to quietly support our mission, membership is a meaningful way to stay connected and strengthen the work we do.
Still have Questions?
Everyone is welcome to attend our charity meetings, which take place every three months, with one Annual General Meeting held each year. You do not need to be a member to attend, although membership provides the opportunity to vote and take part in formal decision-making.