Our Global Partners
We’re proud to collaborate with our international partners, working together to raise awareness and support families affected by Xia-Gibbs Syndrome around the world.
Xia-Gibbs Society (USA)
The Xia-Gibbs Society is a US-based non-profit organisation dedicated to supporting individuals with Xia-Gibbs Syndrome (XGS) and their families. Their mission includes providing resources, raising awareness, advocating for affected families, and promoting medical and scientific research. The Society runs family conferences, funds research initiatives, and manages a global patient registry to improve understanding and collaboration across the XGS community.
Xia-Gibbs Society Germany
The Xia-Gibbs Society Germany is a non-profit organisation supporting individuals with Xia-Gibbs Syndrome and their families across German-speaking regions. Their work focuses on building community, raising awareness, and helping families access relevant information and support. They also aim to increase recognition of XGS within the local medical and educational systems.