Our Therapist Directory Page
We’re currently building a trusted directory of therapists and professionals with experience supporting children diagnosed with Xia-Gibbs Syndrome or other rare neurodevelopmental conditions.
Our aim is to connect families with knowledgeable and compassionate professionals across the UK, and to highlight those who understand the unique and evolving needs of children with complex developmental profiles.
This is an ongoing project, and we continue to add to the list as families share recommendations and professionals express interest in joining.
Speech & Language Therapists (SLT)
Coming soon — we’re collecting recommendations and insights from families.
Occupational Therapists (OT)
Listings to be added — including practitioners with experience in hypotonia, sensory integration, and adaptive skill development.
Physiotherapists
Focused on practitioners who support children with motor delays, hypotonia, and core strength development.
Educational Psychologists
We’re building a list of professionals who can support EHCP assessments and early learning plans.
Music Therapists
Therapists who use music and sensory engagement to support communication, emotional regulation, and developmental goals.
Paediatricians
A growing list of neurodevelopmental and community paediatricians who are open to supporting children with rare conditions like XGS.
As our network grows, we will continue adding listings for play therapists, genetic counsellors, sleep specialists, feeding teams, psychologists and others. If you have worked with someone outstanding, or if you are someone who offers this kind of support, we would love to hear from you.
If you are a clinician, therapist or professional who works with children with rare or complex needs, please get in touch so we can include you in our growing network.