Founder & Chair of Trustee
Kat established the charity alongside her husband and currently serves as Chair of the Board of Trustees. She provides strategic leadership and ensures that the organisation remains family-led, inclusive and ethically grounded. Her lived experience as a parent informs the charity’s direction and decision-making at every level.

Founder & Managing Director
Toby leads the operational delivery of the charity, supporting volunteers, overseeing day-to-day activity and driving strategic development. He brings practical leadership and lived experience to the role, ensuring that the charity’s mission translates into meaningful impact for families affected by rare and complex conditions.

Trustee

Intro